Efforts 4 Ellie

Dear Business Owners-
We are having our 4th Annual Golf Outing on
Thursday, June 7, 2018 at Bay Hills Golf Club.
Please consider being a sponsor for our event. We are raising funds for Glycogen Storage Disease 1B. It is a very rare liver disease that receives no government funding and can be fatal. Ellie receives around the clock care, drinks uncooked cornstarch and spends a lot of time at doctors and hospitals. In recent months, we have lost several children to this horrible disease. This can be cured and we are fighting hard with this
fundraiser to help fund Gene Therapy Trials at NIH. And the New GSD Global Center at UConn Children’s Hospital!!!!!
We thank you for your continued support for Ellie and others suffering from this rare disease. We hope to see you on June 7, 2018!
~ Efforts 4 Ellie
christycentrella@verizon.net
mrcentrella@verizon.net
khinely@usg.com
Please make all checks out to:
Efforts 4 Ellie
P.O. Box 459
Gambrills, MD 21054

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s